I've selfishly changed the title of this thread as the conversation has evolved. I've provided a lot more detail than I expected to and with Tilley's input, I think it has started to introduce the topic of Lyme disease quite well. I hope those who have alreadly posted here dont mind, but given that all posts are to do with Lyme, I think it gives a bit of an insight to lyme disease... and it needs as much awareness-raising as possible in Australia because we're along way behind the pack. My wife and I really benefited from reading other people's snipets online, so who knows, it might even be of use to someone. I hope this is okay with everyone. LYME DISEASE My wife has been chronically ill since she was 12 (now 37). She's been diagnosed with everything from chronic fatigue syndrome to MS and everything in between. While at times she will be appear to be functioning well, she'd often crash, not long after she left uni she was bedridden for 6 months. All her adult life she'd be up and down with all sorts of complications, pains etc. Linked to this is the fact that my 2 young daughters have always had very bad food intolerances and gut problems. Our youngest didn't sleep for the first 18 months until we found an amazing dr who suggested we take her off all fruit and veggies. As strange as it sounds she improved over night so she began an elimination diet where she ended up eating only 5 foods and a nutritional supplement. Although she's improving she's still very limited in what she can tolerate. We always thought their health was related to the health of my wife but couldn't join the dots until we began working with an amazing biomedical dr in Sydney. At the start of last year my wife had bloods sent to germany and was diagnosed with lyme disease. You might have heard of it... apparently it doesn't exist in Australia and certainly isn't recognised by the Australian medical profession, yet totally accepted in Europe. My 2 girls have also been diagnosed with it as it can be passed on from the mother. And the bacterial meningitis I had a few years ago? you guessed it - lyme can be a form of STD. Last year my wife began a ridiculously expensive treatment plan for a few months but it made her so sick she couldn't get out of bed, let alone work. So after loads of research we decided at the end of last year to go to Germany for treatment. Put simply, we had tried every other course of action, and been told by so many drs that they didn't know what was wrong, or that it was in her head, that this was our only hope. Anyway, we took the kids with us and my wife spent 16 days in a clinic in Germany. I also spent a few days in there to fix some ongoing issues from the meningitis. After many months of follow up treatment back here in Australia the improvement has been amazing. This Monday she commences a full-time job, something she hasn't been healthy enough to do for about 10 years. We estimate the cost of treatment over the past 12 months to be around $80,000 out of pocket, including the expense of travelling to Germany, the cost of the clinic and the pre and post treatment. However, it's true what they say that money isn't everything. We're fortunate that we were able to afford it, many other Aussies who go have to sell their home or get personal loans to fund their treatment or not go at all and live with the hideous disease. Even though follow up treatment has concluded, there's still lots of work to be done. She's ridiculously careful about what she eats and takes a huge amount of supplements... And our 2 girls still have lyme, although we're trying to manage it locally. My meningitis symptoms have reduced significantly as Ive finally eradicated all the lyme bacteria. My biggest problem now is trying to keep up with her as she makes up for 25 lost years!