biggest scare ever

First of all I hope I'm not breaching any forum laws by creating another account. I couldn't get in with the name Xenia because someone already has it on SS - me but the email I used no longer exists and I couldn't remember details for my other account.

I'm probably going to be banished from property chat cyberspace again lol but here it goes.

In July this year my 11 year old daughter was diagnosed with cancer. Angelo and I were called into her pediatrics appointment and they told us to take her to womens and childrens hospital immediately and that there was a team of oncologists waiting for her.

We were told it was likely stage 3 and had spread to her brain and lungs - they found a tumor in her lower spine, she would probably require aggressive chemotherapy for 18 months and has a good chance of living for 5 years.

Our life was over

I rang a good friend of mine who has a real estate license and told her to step up and run my business, she did this for FREE for several weeks, another friend stepped into admin also for free- lesson number 1, good friends are the biggest gift in the world.

I then contacted every organisation I know that sends out positive intentions, prayer groups, meditation groups, I did not care what religion, Christian, hindu, universal, Buddhist and asked them to pray or send positive intentions out for our daughter.

I used every mindset tool I have ever spoke about, wrote about or heard about - it was extremely difficult to stay strong and stay in present time, I'm naturally a strong person but in this situation I called on other good friends to keep me up. Who is around you is important.

I kept negative people away from my daughter, including my mum who was not able to hold herself together.

The oncologists got to work to identify the spread of the tumor, we were in hospital for almost a week. I was dressed in a business suit, high heel shoes etc.... at the initial appointment I had no idea that this was the turn life would take for us on that day.

I asked my husband to go home and bring me some track suit pants and T-shirts, he came back with tight jeans and 3 jackets - remind me again what husbands are good for LOL

The oncologists took 5 days to give us results - they said it would take a few hours to identify the spread. After 5 days they told us that there was no spread of any tumor cells to her brain and lungs and they were not able to explain it as given the size of the tumor there should at least have been some metastasis.

They then did a biopsy of the tumor, sent us home and made an appointment to come back and discuss treatment.

The day before the appointment at 7:30pm they rang and said they cancelled the appointment because they discovered THERE IS NO CANCER PRESENT.

Miracle or misdiagnosis?

I don't know and I don't care, I am grateful to the universe that whatever it was, it's gone.

I remember one time having a meeting with one of the oncologists who was describing some scary and terrible things and how they would do surgery and the very bad odds against it all. I was so stuck by grief I was unable to get off the chair, he walked off and said "take as long as you like I know it's hard" I made a decision after looking at the mess I had become that this is not me, I will not allow this and he does not have the right to give my child a death sentence, she is going no where because she has a physical life to complete here on earth!!! He may understand cells and physical things but he does not understand the power of the human mind.


This has changed my life forever. I am now very grateful to the little things in life. The challenges at work are no longer challenges, I'm grateful for difficult clients and situations because if my child was really sick I would not have the luxury of building a business - my focus would be on getting that child well again and that would take all I have.

I'm back and I am completely changed.

 

I always like a good ending! Thank you for sharing

 

Welcome back. That's bloody scary. Wouldn't wish that to anyone. Glad it turned out well.

 

Welcome back Xenia, and I'm sorry (as I'm sure we all are) that you had that awful experience - this is unreservedly a parents collective worst nightmare.

But it sounds like there is a definite positive lining that you have recognised.

It's a miracle in the sense that your child is well, but it's more accurately an incorrect provisional diagnosis - this is why they proceeded with biopsies to confirm, no imaging is 100%.

I had a patient that I discharged from hospital yesterday. I told him he had metastatic cancer a month ago. Further studies suggested this was not the case, and that it was only locally advanced. I did his operation and had the pleasure of telling him that it was nowhere near as bad as even the second round of tests had suggested. This isn't a miracle, but a reflection of the inaccuracy of the available tests. We know this, which is why we do more tests. For you - it's the best news in the world.

I hesitate to add this but I feel strongly about it - I also see a lot of harm from the 'power of the mind' and people seeking alternative therapies. There are scientific studies dismissing the value of prayer and positive thoughts on outcome. Perhaps once a fortnight I see a patient where the treatment for curable disease has been delayed for alternative therapies and wishful thinking, with advancement of the disease beyond a curable stage. So, there are two sides.

It's good to have you back.

 

Prayer power! And excellent Modern Medicine! And Good friends
Go back and thank the Buddhists, Hindu, Universals, and tell them of the part they had to play in your daughters life!
And then thank the Medicos!
And the Good friends!
We are just little things in the scheme of it all!
Every moment we draw breath is precious!

 

PS I'm not sure what the original presentation was, but we call this a VOMIT (victim of modern imaging and technology).

 

Welcome back Xenia. A touching story and really one that exposes the fragility of life. Life must be cherished and enjoyed to the maximum because no one really knows when theirs (or anyone else's) number is up.

Stay strong and stay focused. All the best,

Cam

 

Welcome back Xenia

Best Xmas present this year, thanks for sharing

MTR

 

Great to hear you had a positive outcome with your daughter,life is short as you said.
When you have a major life impact to either you or your family it changes your perspective completely,you don't sweat the small stuff.
Danger though is to go back to your normal routine when life returns to "normal" which you should fight like hell to prevent,cherish each day you have with your daughter.

“Days are expensive. When you spend a day you have one less day to spend. So make sure you spend each one wisely.” – Jim Rohn

 

Good on you for getting through such a stressful time. Glad all is ok now.

 

Wow what a scary time , glad it all worked out in the end and your family is healthy.

And welcome to PC, its been a while since we have seen you!

 

thanks everyone.
Bran, it's interesting if we were to resolve this, it would have been only through conventional procedures not alternative medicine. I see a lot of merit in alternative medicine but it is not systemised and tested and measured enough for my liking. I also have a bit of a medical background, nothing like you or the oncologists, just medical research but I think that kind of made it worse because it was enough to understand everything that was going on.

 

Some people find merit in religion and positive mindset though

 

I'm glad that we were vomited on then, it could have been worse, it could have been a correct diagnosis.

 

people will choose what ever path and vehicle works best for them in getting to whatever answers they are searching for.

 

Welcome back and I'm soo pleased your daughter is ok!

 

I get the last part - my wife has had two early melanomas last year. Not fun.

 

How did your daughter take it?

 

So glad your daughter is OK, you need to take care of yourself as the effect of this on your body and mind will take some time to get over.
Best wishes

 

That's a good outcome and i hope it stays that way,welcome back and good luck..